Step inside the life of woman, mother, daughter and patient who is raising a son and set of twins and realizing every day that life is truly what you make it!
Monday, December 8, 2008
For Starters
Well it's my first post on here so I suppose it better be a good one. It's been quite a week for my family and I. Just to start with having 3 children in itself is quite exhausting. This time of year my husband has to work longer hours and often that is quite hard. At times you may read about the occasional griping of his job. I'll try to keep that at a minimum. So this first entry is going to be about the news that I received last week. Since 2003 I have struggled with health and it's been an ongoing thing. Back and forth to the Dr I have traveled with testing, labs, medicine, etc. It's been a nightmare. Many have had conclusions as to what they thought was going on. We have our own conclusion - a medicine I took. It's documented that there are horrible side effects associated with taking this drug. About 6 months ago I was tested for MS, Multiple Sclerosis. The MRI came back negative for lesions on the brain. I was told, however, that this does not always mean that a person doesn't have MS. It's a process of elimination and based on symptoms and that it can take years for someone to have a positive MRI even though they have been living with the symptoms. So I went about normal life and felt like things were back to "normal", whatever that may actually be. That was until this past Monday when I had a follow-up with one of my Dr's. As always we went over the necessary things, changes, etc. He then informed me that he still believes we are dealing with MS. He wanted my family and I to be mindful of the symptoms and to be mindful of what was going on. He no longer wanted me to drive long distances by myself. He increased my medicine for one month and if it doesn't work it's on to something new. I will only see him every 6 months now because he is an hour away and again it's the driving issue. This time around I really had no reaction except listening and taking it all in. Last time I was so numb I drove all the way home in silence. This time my mom and children were with me. So I have been able to tell a few people what is going on and I have contacted the local MS support group where I live. I plan on attending after the first of the year and connecting with people who understand. My family is being great and on days that I don't feel well or can't drive they are right there pitching in. I'm not expecting things to be easy or for everyone to understand or "get it" right away. This is still new to me and I'm not even sure I truly get it. I know Dr's can be wrong and make mistakes but for now we are just living in this moment and dealing with what we know. I'm so truly blessed by what I have and it's taken a long time to get to where I am, I've come so far! For now I'm going to close but stay tuned..... the kids are running around and I'm sure there is a story lurking in what they are doing!
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